Online resource launched for HAE

June 2017

General Practitioners

Country of origin: USA

Patients with a rare disease called Hereditary Angioedema (HAE) - and their doctors - can find comprehensive information about the condition on a new website, www.AllAboutHAE.com, launched by CSL Behring. The site, which is designed in two sections - one for patients and the other for doctors - presents an array of features, including:

- An online journal tool designed to encourage patients to track symptoms of their condition and their own progress toward better health
- Information on HAE and how it affects the body
- A special ?Family Tree? section that helps patients better understand how HAE presents in families
- An ?Ask An Expert? section offering medical answers from Board Certified doctor, Dr Henry Li
- Information on eligibility for and enrolment in IMPACT, a clinical trial that examines treatment for HAE
- Links to additional resources, including patient organisations and medical sites

Tools used in making an accurate diagnosis of HAE are available, including the Canadian and European Algorithms, information about what to do in case of an emergency, emerging new treatments for HAE and more.

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