Web 2.0 Systems Supporting Childhood Chronic Disease Management

January 2018

Informatics

Country of origin: Sweden

Chronic disease management is a global health concern. By the time they reach adolescence, 10-15% of all children live with a chronic disease. The role of educational interventions in facilitating adaptation to chronic disease is receiving growing recognition, and current care policies advocate greater involvement of patients in self-care. Web 2.0 is an umbrella term for new collaborative Internet services characterised by user participation in developing and managing content. Key elements include Really Simple Syndication (RSS) to rapidly disseminate awareness of new information; weblogs (blogs) to describe new trends, wikis to share knowledge, and podcasts to make information available on personal media players.

A recent study addressed the potential to develop Web 2.0 services for young persons with a chronic disease. It is acknowledged that the management of childhood chronic disease is based on interplay between initiatives and resources on the part of patients, relatives, and health care professionals, and where the balance shifts over time to the patients and their families.

Participatory action research was used to stepwise define a design specification in the form of a pattern language. Support for children diagnosed with diabetes Type 1 was used as the example area. Each individual design pattern was determined graphically using card sorting methods, and textually in the form Title, Context, Problem, Solution, Examples and References. Application references were included at the lowest level in the graphical overview in the pattern language but not specified in detail in the textual descriptions.

The design patterns are divided into functional and non-functional design elements, and formulated at the levels of organisational, system, and application design. The design elements specify access to materials for development of the competences needed for chronic disease management in specific community settings, endorsement of self-learning through online peer-to-peer communication, and systematic accreditation and evaluation of materials and processes.

The research concludes that the use of design patterns allows representing the core design elements of a Web 2.0 system upon which an 'ecological' development of content respecting these constraints can be built. Future research should include evaluations of Web 2.0 systems implemented according to the architecture in practice settings.

The complete article is available online.

Resources

The Lancet March 2019 The Lancet

Available for both iPad & iPhone, the new and improved The Lancet app is free to download and offers...
MedCalX March 2019 MedCalX is a tool that enables medical professionals to easily use complicated medical formulas, scores and classifications.
Read by QxMD Personalized Medical Journal February 2019 Read is an app for both iOS and Android that centralizes all your medical literature and journals. Using a magazine format,...
MDCalc the best online medical calculator February 2019 MDCalc began life as an EM residentís WordPress site in 2005 and today is a highly-rated resource for practicing physicians...
Safety Features Of GP Computer Systems January 2019 A survey and study on the safety features required in GP computer systems, commissioned by the NPSA and published by the...
The CDC Clear Communication Index November 2018 The CDC Clear Communication Index (Index) is a research-based tool to help you develop and assess public communication...
PRIMIS + November 2018 The importance of data security and confidentiality is one of the issues that PRIMIS (Primary Care Information Services) is...
Journal of Medical Internet Research October 2018 The "Journal of Medical Internet Research" (JMIR; ISSN 1438-8871, Medline-abbreviation: J Med Internet Res), founded in...
Informatics, biometrics and epidemiology online July 2018 The scientific journal of the German Society for Medical Informatics, Biometrics and Epidemiology (Deutsche Gesellschaft...
Read by QxMD March 2018 There are a few ways to browse journal content. The landing screen is Featured Papers, which presents citations from your...
Search by Keyword