Rare diseases strategy

January 2017

General Practitioners

Country of origin: UK

The ‘UK Strategy for Rare Diseases’ Sets out a shared vision for the UK to improve the lives of those with rare diseases.

It contains over 50 commitments to ensure people living with a rare disease have access to the best evidence-based care and treatment that health and social services, working with charities, researchers and industry, can provide.

The UK commitments are in 5 areas:

• making sure patients and their families and carers have the information they need, are listened to and consulted
• developing better methods of identifying and preventing rare diseases
• improving diagnosis and earlier intervention for those with a rare disease
• developing better coordination of care for those with a rare disease, including joined up consultation and treatment schedules
• building on research to improve personalised approaches to healthcare for those with a rare disease

All 4 UK countries will work together to achieve these goals but will produce their own plans by February 2014 to help put the strategy into action.

Resources

UK Physical Activity Guidelines September 2017 A UK-wide CMOs report presents new physical activity guidelines for all four UK home countries, covering early years;...
Improved Online Resources For Patient And Drug Information September 2017 GPnotebook.co.uk (an online clinical medical encyclopaedia) has teamed up with medical search engine SearchMedica.co.uk to...
Online tool aids diagnosis September 2017 ISABEL, an on-line tool helping GPs and nurses to make fast and accurate diagnoses of children's illnesses.

Jason...
UK Physical Activity Guidelines September 2017 A UK-wide CMOs report presents new physical activity guidelines for all four UK home countries, covering early years;...
Comprehensive Antibiotic Resistance Website September 2017 The CAN-R website is aimed at supporting and educating Canadian healthcare providers and researchers on the escalating...
Elsevier Journals September 2017 Elsevier is a leading publisher of health science books and journals, helping to advance medicine by delivering superior...
Leadership guide September 2017 The NHS Leadership Framework is now available and is applicable to everyone in health and care, no matter what their...
Web Service Allows Patients To See How Drugs Work September 2017 iGuard.org, a free, patient-driven on-line health care community, has launched an innovative new patient empowerment tool....
Bone curriculum August 2017 The American Society for Bone and Mineral Research site provides information, resources and course material regarding bone...
Global Healthcare Resource August 2017 The US Institute for Healthcare Improvement free site enables healthcare professionals to tap the expertise of their...
Search by Keyword